Dilemmas Being Encountered by Primary Caregivers in Handling the Hygiene of Menstruating Girls with Intellectual Disability (ID): An Exploratory Study

Abstract

This study explored the challenges faced by primary caregivers in managing the hygiene of menstruating girls with Intellectual Disability (ID) in Lucknow, India. Utilizing an exploratory research design, individual interviews were conducted with caregivers at special schools, employing a self-prepared Menstrual Hygiene Questionnaire for Girls with ID to ensure confidentiality and provide necessary language support. Findings indicated that girls with mild to moderate ID were trainable, leading to manageable dilemmas for caregivers. However, the study identifies a gap in understanding the experiences of caregivers of girls with severe and profound ID, warranting further research. It underscores the significance of family dynamics and advocates for the development of support programs to aid caregivers. Additionally, the study calls for increased awareness of the unique challenges faced by these caregivers and the implementation of tailored educational programs to address their specific needs effectively.